Hello my name is Devin. I was born with an unilateral cleft lip and a bilateral cleft palate. I also have
shorten leg bones and have Pierre Robin features.  I was diagnosed when I was still in my mommy's tummy.
Which gave her plenty of time to decide which method of treatment would best for me. My mother and father
decided that treatment in St Louis would be the best, even though it was very far away. If my parents
took me to doctors that were close to where we live I would have needed to have about 6 to 8 different
surgeries. They did not want this for me. Taking me to SSM Cardinal Glennon Children's Medical Center in
St Louis meant I would need less surgeries meaning less pain and suffering.

January 2012 we will be in St Louis again for our annual Cleft Palate Team Meeting and also they will be making the decision if another surgery will be necessary to aid Devin with speech. We will be there for at least 3 days doing many tests. The worse one is having them insert a probe very deep into his nasal cavity while he is talking so they can assess the amount of air that escapes through the nose.

(I do not foresee this going good)

I am updating the site and it should be up and running in a couple days...

I am a mother, not a doctor. Please do not take the information in the web site as anymore then a mother sharing her story.